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UID:
CATEGORIES:Vortrag
SUMMARY:ÖPPM Webinar -"Public perspectives on the donation and sharing of genomic and health information: findings of a global study"
LOCATION:Webinar
DESCRIPTION;ENCODING=QUOTED-PRINTABLE:<p>	&nbsp;</p><p>	<strong>Speaker:</strong> Dr Richard Milne (Wellcome Geno
 me Campus)</p><p>	&nbsp;</p><p>	<strong>Chaired:</strong> Univ. Prof.in Mag
 .a Dr.in Barbara Prainsack (Department of Political Science, Vienna, Austri
 a):</p><p>	In this talk, I discuss the importance of public and patient per
 spectives in the development of genomic medicine, and present the findings 
 of the Your DNA, Your Say study. Your DNA, Your Say is a survey of public a
 ttitudes towards the donation and sharing of genomic and health data, inclu
 ding 37,000 responses in 15 languages across 22 countries. I present the fi
 ndings of the study in relation to people&rsquo;s willingness to donate dat
 a about them for clinical and research use, and examine how this is influen
 ced by their familiarity with genetics, their views of genetic information 
 and their trust in those responsible for collecting and managing data.</p><
 p>	&nbsp;</p><p>	Further information: <a href="https://www.personalized-med
 icine.at/4th-annual-meeting-of-the-oeppm/">https://www.personalized-medicin
 e.at/4th-annual-meeting-of-the-oeppm/</a></p><p>	&nbsp;</p>
CONTACT:ÖPPM
DTSTAMP:20260422T210400Z
DTSTART;TZID=Europe/Vienna:20201124T163000
DTEND;TZID=Europe/Vienna:20201124T173000
SEQUENCE:1
TRANSP:OPAQUE
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